can,â my mom said with some of her patented hope.
There isnât a cure for Lou Gehrigâs disease, but there are ways to deal with it. With my dad, the disease had started its attack in his upper body. Thatâs not good because it can go after the diaphragm, which in turn affects breathing. Thatâs how most ALS patients go: their lungs weaken so they canât get the almighty oxygen to the rest of their bodies. But my mom made it clear that once an issue came up, weâd toss a solution at it. So, if my dad couldnât chew, heâd go on a feeding tube. If he couldnât stand in the shower, heâd get a shower chair. If he couldnât walk, heâd go in a wheelchair. If he couldnât breathe, heâd go on a respirator. If he couldnât talk, heâd use a communication device. If he couldnât make it to the toilet for a shit or piss, heâd use diapers and a urinal. It didnât matter how much any of this cost. My parents were willing to spend everything they had. A lot of ALS patients choose to do nothing and just let the disease take them. Or some will do the feeding tube and wheelchair grind. Only a small percentage elect to go on a respirator. But it sounded like my dad was going full bore. It was the full Marshall Never-Give-Up Package.
âI donât mind spending the rest of my life taking care of him,â my mom said as she took my dadâs Lou Gehrigâs disease hand into her cancer hand and smiled a supportive smile.
But the thought of seeing my crippled dad in a wheelchair, shitting into a diaper while some robot replaced his gentle voice and some clunky machine breathed for him, sounded like a nightmare to me. I took a sip of my eggnog and looked at Abbyâs sweet face, trying to push the image out of my mind.
The next item on the list was what to do with my dadâs newspapers. My siblings and I were too busy pursuing our own interests to give a fuck about the family business. My dad had a partner, Kris, but Kris was looking to retire. So my dad figured that heâd sell the papers to make things easier when he got sick. He certainly couldnât run a newspaper from a wheelchair while hooked to a breathing machine.
Next on the list was the Boston Marathon. My dad had run his skinny little ass off to qualify for it, and he still wanted to do it. We werenât sure if he should be running now that he was terminally ill. But Dr. Bromberg seemed to think it would be okay, as long as he stayed hydrated and continued to eat well.
âHeâs still going to run it,â my mom proclaimed.
âReally?â I said. âI mean, thatâs really inspiring and all, but is it really okay?â
âIâll be fine. Iâm going to keep running,â my dad explained.
On the one hand, I thought it was a complete mistake. By this point, I had read a lot more about ALS. I read that though they donât know what causes Lou Gehrigâs disease, it seems to occur with greater frequency in those people who push their bodies to the max. Lou Gehrig himself was famous for setting the record for most consecutive baseball games played, 2,130âa record that stood for fifty-six years before Cal Ripken Jr. finally broke it. I thought all the running was a contributing factor to my dadâs diagnosis. It certainly couldnât be good for the muscles, and it probably drained my dad of all the nutrients that had kept him so healthy and strong over the years.
But on the other hand, my dad loved running. It was his escape, his therapy, his release. Whether he ran or not, he still had Lou Gehrigâs disease, so he might as well die doing something he loved.
My mom was a little uncertain about the marathon, but she knew how much he loved it, so she decided to fully support it. Sam and my dadâs other running pals, Donna and Paula, said theyâd run it with him to make sure he made it through.
Next up was managing